Health Literacy – Not “Feeling” It?

health-literacy

Bernadette Keefe MD

Health Literacy – It’s still not catching on.

The Center for Disease Control and Prevention (CDC) defines health literacy as

“the degree to which an individual has the capacity to obtain, communicate, process and understand basic health information and services to make appropriate health decisions”.

 As a believer in improved general literacy for citizens, I have assumed that health literacy, achieved through quality health information, having been easily accessed and well understood, would be akin to the process of general literacy. But just as education involves more than the conveyance of information, it is similar for achieving health literacy.

Although considerable efforts have been made regarding the formulation and dissemination of health and self-care information, we are seeing little effect on health outcomes. All parameters of health and wellness in the U.S. remain stubbornly poor, including the high incidence of obesity, type 2 diabetes, heart disease, cancer, mental health, and addiction. Healthcare systems and healthcare professionals continue to tout patient engagement strategies and the importance of health literacy, but as Michael Friedman states in his excellent piece on the topic:

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Time to Decouple Fear and Health

FearBlog?

Bernadette Keefe M.D.

“Pseudo-dangers represent further opportunities to avoid problems we do not wish to confront….” – Barry Glassner, The Culture of Fear

Introduction

For a while now, I’ve been concerned about the increasing role that fear has played as a tactic in persuading patients to choose certain treatments in healthcare, and to adopt certain habits. Fear is also, often a dominant driver for patients in their health decision-making process.

Fear, however, is an unwanted distraction when making decisions. In contrast to a calm state of mind, it creates added anxiety and stress, in a citizenry already burdened with increasing stressors. How can adding to this be constructive, or further, even moral? How can healthcare decisions, made from fear, be in any way conducive to optimal health outcomes, or conducive to sustainable well-being throughout our lifespans? 
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slow medicine – not can we afford it, but how can we not?

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The_Doctor_Luke_FildesBernadette Keefe MD

The Unease

Over the past few decades there has been an increasing disquiet among doctors and patients. Prior to the late 1970s (pre CT/MRI era) other than basic blood work and plain xrays, there was little in the way of testing for disease. However physicians were well equipped with a robust heritage of  patient bedside history-taking and examination skills. Adept physicians in elucidating a pertinent historical record and performing patient examinations were brilliant diagnosticians. Lavishly written patient narratives and exquisite physical examinations filled voluminous charts.

The late 1970s ushered in organized medicine, HMOs, regulations and abundant technological and medical advances. This potent combination resulted in a tremendous escalation in the volume and pace of healthcare. Physicians, once loved for their bedside manner and comfort (1950’s-1960’s) found, from 1980s-present that they were so rushed and burnt out they had little empathy to spare. Patients picked up on this and, coupled with little time to ask questions and (now) electronic medical records consuming their doctor’s attention, stopped feeling cared for. They stifled their questions and stopped buying into the therapies being proposed for them. (Note: Perceived lack of empathy has been shown to adversely affect clinical outcomes.)

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